Friday, November 30, 2007

Lunatics given place on asylum board


Respectful Insolence: Open-minded to the point of brains falling out: Antivaccinationists appointed to federal autism panel
We've had one example this week of people with minds so open that their brains fell out at the Oxford Union, which invited Holocaust denier and British National Party leader Nick Griffin to "discuss free speech." Now, sadly, I see another, this time it's the United States government, which has invited die-hard antivaccinationists to be on a major federal panel about autism:

WASHINGTON (Reuters) - Advocates who believe vaccines may cause autism will join mental health professionals and neurologists on a new federal panel to coordinate autism research and education, the U.S. Health and Human Services Department said on Tuesday.

Parents of children with autism and a writer who has an autism spectrum disorder will also be on the Interagency Autism Coordinating Committee, HHS said.


Powered by ScribeFire.

Tuesday, November 6, 2007

Living with Asperger's -- radio



Ockham's Razor - 28October2007 - The trouble with Harry
Science teacher Dr Berry Billingsley from Windsor in the UK talks about her life with Harry, her nine-year-old son who has Asperger's syndrome.



Show Transcript


Powered by ScribeFire.

Thursday, August 30, 2007

Girls with autism -- New York Times

Autism - Mental Health and Disorders - Brain Development - Genetics - Girls - New York Times
What Autistic Girls Are Made Of

An article on the particular problems of girls with autism, partly related to the fact that there are fewer of them. In many ways, girls have it harder than boys on a social level. Extract:

Because there are so many fewer females with autism, they are “research orphans,” as Ami Klin, a psychology and psychiatry professor who directs Yale’s autism program, puts it. Scientists have tended to cull girls from studies because it is difficult to find sufficiently large numbers of them. Some of the drugs, for example, commonly used to treat symptoms of autism like anxiety and hyperactivity have rarely been tested on autistic girls.

The scant data make it impossible to draw firm conclusions about why their numbers are small and how autistic girls and boys with normal intelligence may differ. But a few researchers are trying to establish whether and how the disorder may vary by sex. This research and the observations of some clinicians who work with autistic girls suggest that because of biology and experience, and the interaction between the two, autism may express itself differently in girls. And that may have implications for their well-being.


Powered by ScribeFire.

Tuesday, August 21, 2007

Aspies explained

A beautiful, hilarious, insightful article on growing up with Asperger's, by music critic Tim Page. Anyone who knows one, or indeed is one, will smile with recognition. If you wanted a clear explanation of what exactly Asperger's is, and how it's nothing like Rain Man, you couldn't ask for better.

Here's a short extract, unexpected and typically funny.

Oddly, the book that helped pull me into the human race was Emily Post's "Etiquette," which I had picked up in a moment of early-teen hippie scorn, fully intending to mock what I was sure would be an "uncool" justification of bourgeois rules and regulations. Instead, the book offered clearly stated reasons for courtesy, gentility, and scrupulousness;reasons that I could respect, understand, and implement. It suggested ways to inaugurate conversations without launching into a lecture, reminded me of the importance of listening as well as speaking, and convinced me that manners, properly understood, existed to make other people feel comfortable, rather than (as I had suspected) to demonstrate the practitioner's social superiority. I revelled in Post's guidance and absorbed her lessons. And, typically, I took them too far: even today, I would never dream of addressing a teen-age busboy in a small-town diner as anything other than "sir".



Powered by ScribeFire.

Sunday, August 12, 2007

I Cannot Tell a Lie - what people with autism can tell us about honesty

Article by development expert Simon Baron-Cohen on theory of mind (Wiki) and the ability of people with autism to be deceitful.

Blog post with some explanation of terms, which also signals Bad Science's treatment of an article on autism research in The Observer.

Powered by ScribeFire.

New Theory about Autism Roots

It appears that some boys have as much as a 50 percent risk of developing the mysterious disorder
By Nikhil Swaminathan

In work that may one day lead to earlier detection of children at risk
of developing autism, a team of scientists has devised a genetic model
for the enigmatic disorder. The two-tiered theory integrates families
with one or more autistic children.

More ...

Powered by ScribeFire.

Sunday, May 20, 2007

Autism and robots

Med Journal Watch has an interesting article on the use of robots in teaching autistic children to interact with others.





Powered by ScribeFire.

Thursday, May 3, 2007

Autism Journal contents, May issue

Most of the following articles are available free in abstract form only to ordinary readers.

A new issue of Autism has been made available:

1 May 2007; Vol. 11, No. 3

URL: http://aut.sagepub.com/content/vol11/issue3/?etoc

Editorial
Dermot Bowler
Autism 2007;11 203-204

http://aut.sagepub.com/cgi/reprint/11/3/203?etoc

Pilot study of a parent training program for young children with autism:
The PLAY Project Home Consultation program
Richard Solomon, Jonathan Necheles, Courtney Ferch and David Bruckman
Autism 2007;11 205-224

http://aut.sagepub.com/cgi/content/abstract/11/3/205?etoc

Nature of motor imitation problems in school-aged boys with autism: A motor or a cognitive problem?
Marleen Vanvuchelen, Herbert Roeyers, and Willy De Weerdt
Autism 2007;11 225-240

http://aut.sagepub.com/cgi/content/abstract/11/3/225?etoc

Evidence against poor semantic encoding in individuals with autism
Andrew J.O. Whitehouse, Murray T. Maybery, and Kevin Durkin
Autism 2007;11 241-254

http://aut.sagepub.com/cgi/content/abstract/11/3/241?etoc

Memory and generativity in very high functioning autism: A firsthand account, and an interpretation
Jill Boucher
Autism 2007;11 255-264

http://aut.sagepub.com/cgi/content/abstract/11/3/255?etoc

Face processing in children with autism: Effects of stimulus contents and type
Leslie L. Speer, Anne E. Cook, William M. McMahon, and Elaine Clark
Autism 2007;11 265-277

http://aut.sagepub.com/cgi/content/abstract/11/3/265?etoc

Lack of evidence for increased genetic loading for autism among families of affected females: A replication from family history data in two large samples
Robin P. Goin-Kochel, Anna Abbacchi, John N. Constantino, and Autism Genetic Resource Exchange Consortium
Autism 2007;11 279-286

http://aut.sagepub.com/cgi/content/abstract/11/3/279?etoc

Book review: Encouraging Appropriate Behavior for Children on the Autism Spectrum: Frequently Asked Questions by Shira Richman. London: Jessica Kingsley, 2006. ISBN 1843108259. $19.95 pbk. 220 pp
Carrie Roylance
Autism 2007;11 287-288

http://aut.sagepub.com/cgi/reprint/11/3/287?etoc

SAGE Contents Alert is available to anyone free of charge. Please let your colleagues know that they may sign up for this service at
http://online.sagepub.com/cgi/alerts. Don't forget to sign up for SAGE Product Alerts at http://www.sagepublications.com/newproductalerts to receive information on new journals, books and other products of interest.

To order reprints, please visit http://www.sagepub.com/reprints.aspx for relevant details.

SAGE Publications
In the USA, the Americas, Caribbean and Asia Pacific:
2455 Teller Road
Thousand Oaks, CA 91320 USA

In the United Kingdom, Europe, Middle-East, Africa and Australasia:
1 Oliver's Yard
55 City Road
London EC1Y 1SP United Kingdom

_______________________________________________________________________
Copyright (c) 2007 by The National Autistic Society, SAGE
Publications.


Saturday, April 28, 2007

Snow Cake

This is a review of a newly-released movie in which Sigourney Weaver plays a high-functioning autistic. The writer is not too enamoured of the film, though he has some adoration issues regarding Ms. Weaver.

I was interested to learn that the screenwriter wrote the story based on her experiences with her own seven-year-old autistic son. Quite how a son of seven maps onto a woman of 58 is anyone's guess.

Powered by ScribeFire.

Monday, February 19, 2007

Born on a Blue Day

Astounded this weekend to see, on the New York gossip blog Gawker, a short piece supposedly satirising the New York Times' exaggerated coverage of autism. The post, titled New York Times Autism Round-up, did indeed lead to four different articles on autism (one from Thursday, but who's counting?) -- enough for most non-specialists from one newspaper.

Among them, a story on Daniel Tammet, an English man who has Asperger's, and who more importantly has been diagnosed Savants Syndrome. I've been planning a blog post on Tammet since seeing the film made about him by the British Five TV company, which I'd seen on Google Video via the excellent smashingtelly site, which gathers full-length TV programmes on a daily basis. The film is called The Boy with the Incredible Brain.

To cut a long story short, Tammet was a difficult infant who wouldn't stop crying. He then suffered multiple seizures, after which he found he now had the ability to "see" numbers in his mind in an infinite variety of shapes and colours. This is a condition neurologists call synaesthesia, though it's written about more evocatively by Jorge Luis Borges in his story Funes the Memorious, in which Funes, following head trauma, cannot forget a single detail of anything he has ever seen, including every configuration of cloud in every sky he has ever looked at.

Those cloud formations are akin to numbers as Daniel Tammet sees them, and he is able to imagine impossibly complex numbers by, to put it terribly roughly, visualising himself withinI the landscape in which they exist.

As a result, he can perform massive calculations in his head in seconds flat, and was able to memorise the constant Pi to an impressive 22,500 places. The film captures that feat, and follows him as he meets autism experts like Simon Baron Cohen, neurologists and fellow autistics, like Kim Peek, said to be the inspiration for Dustin Hoffman's character in Rain Man.

I'll be posting a review of Rain Man, which I consider to be a pernicious influence on public perception of autism, one of these days. I'll also come back to the Daniel Tammet film, which troubled me in a number of ways and yet deserves more detailed consideration.

One thing I won't have the luxury of coming back to after further cogitation, however, is a reading of Daniel Tammet's autobiography, Born on a Blue Day (which gives this post its title) on BBC Radio 4, which you can listen to on the Internet for one week. The first 15-minute extract went out today, with further extracts daily for the rest of the week. I'm not at all sure they do an omnibus edition, so don't count on it.

I dare say I'll have some comment to make after I've listened to all of it.

Sunday, February 4, 2007

Temple Grandin

"I have the nervous system of a prey species animal," remarks Dr. Temple Grandin in the documentary The Woman Who Thinks Like a Cow, available on Google Video. Fear, she says, is her main emotion, and often in the course of this 40-minute film, she looks and acts as if she were being hunted. Some of the time, in my view, she is.

Dr. Grandin's reputation is such that she needs little introduction. Severely autistic as a child to the point where her father almost had her institutionalised, she achieved a breakthrough when she was sent to an aunt's ranch in Arizona and discovered a remarkable affinity with animals. Since then she has gained a doctorate in animal sciences, and has made a worldwide reputation as an expert in animal behaviour at the slaughterhouse. Her insights have made the slaughtering of animals less of an ordeal for them, and along the way more straightforward and presumably profitable for the meat industry. Whether there's a conflict between the two, Dr. Grandin takes a resolutely realistic line. She's not interested in ideology, she points out, but in what is practical and applicable in real life.

The title of the film is sensationalistic, and doubtless intended to evoke Oliver Sacks, in whose book An Anthropologist on Mars Dr. Grandin was featured. It also sets up a strange paradox. Aren't we supposed to think that autistics are unable to empathise, to put themselves into another person's shoes, or brain? If autistics are supposed to be assumed to have no Theory of Mind where fellow humans are concerned, what are we to make of one who sees the world through a cow's eyes?

In the event, I don't think on the basis of this film that such a thing is happening at all. I should issue the caveat that although I have recently bought Dr. Grandin's book Animals in Translation, I haven't yet got around to reading it, and so this opinion will be, as all opinions should be, subject to later review as more information comes in.

What I think Dr. Grandin is doing, is looking at the situation cows are put into not from a bovine point of view, but with a problem-solving clarity. It doesn't strike me that she wants to improve efficiency and profit, which will doubtless have been the approach of most or all of those attempting to design slaughterhouse procedures in the past. She says she wants to take care of the animals' welfare, which is a slight bias. But her advice appears to me to be based on descriptive insights, rather than prescriptive principles. In other words, she seems to arrive at conclusions based on what she sees, and to see things based on her ability -- and willingness -- to look. That it can be stated in such apparently simple terms doesn't make it any less remarkable.

Temple Grandin is a remarkable person, for having overcome what seemed like a crippling disability to achieve the respect of the academic community, and also for having dared to enter the fortress of the macho meat industry as a woman and an academic, and brought them round to her way of thinking.

But the persistence of her feeling like a prey animal is still visible in this film, in large part because of the excruciatingly ham-fisted way she is handled. The interviewer/reporter is not credited, so I'm assuming she is writer-producer Emma Sutton. The questioning is as crass as you could imagine. Dr. Grandin is asked about boys she may have liked at school, just as she's busy talking about the far more important subject of being picked on for being different. When Dr. Grandin picks out some magazines to take on board a plane for a flight to a meat-industry convention, and expresses a preference for fact-based magazines, Sutton still feels the need to press her on what she thinks of women's magazines. In her home, meanwhile, Dr. Grandin is as edgy and wary as a prey animal, and one is forced to conclude that Sutton wants it that way, for she does nothing to put Dr. Grandin at her ease. I had the unpleasant feeling during those exchanges that Sutton was prodding her to expose her freakishness -- because without such prodding she comes across as slightly awkward, but not freakish in any way.

And why on earth is Dr. Grandin referred to throughout as "Temple"? Does the BBC make documentaries on Professor Stephen Hawking in which he's called "Stephen"? Is Professor Dawkins "Richard"?

Oliver Sacks (perhaps I should just call him Oliver) offers a clue. In his written work, Sacks consistently refers to the subjects by their first names, perhaps to preserve a measure of anonymity. As he's writing of her as a subject in his book (see above) he calls her "Temple".

But Emma Sutton is not in that position, and it's notable that other people in the film are given their proper names. There's no talk of "Bruno" when she's referring to the famed developmental psychologist Bettelheim. The constant reference to "Temple" throughout the film was the most grating thing about it. I found it inappropriate, demeaning and disrespectful, in a "Does he take sugar?" kind of way.

The film also missed the chance in its concentration on the meat industry to explore two aspects of Dr. Grandin's experience which are common among autistics and which she might be in a position to articulate more fully: the attention -- often to the exclusion of all else -- on tiny details of a picture; and the problem of sensory overload, which to be fair was dealt with more extensively, especially as it gave the film-makers a chance to show Dr. Grandin enclosing herself in a grab-chute of her own devising, the Squeeze Machine, modelled on the ones found on cattle-farms, which she uses to apply the deep all-over pressure which she needs to calm herself in stressful times.

The film is of great interest, finally, because its subject is. Anyone interested in autism cannot pass over Temple Grandin as a matter for study, and this film was worthwhile despite its makers' approach, not because of it. Luckily, Dr. Grandin's own books and other autobiographical works (see her own website for details) more than cover for any failings on the part of the BBC. If the film sends people in that direction to find out more, it will have served a useful purpose. But what a missed opportunity.

Saturday, February 3, 2007

Introduction?

A friend has suggested I start this blog off with an introductory post, for the benefit of anyone who doesn't know much about autism or Asperger's.

I can see the force of that idea, but on the other hand I'm thinking: Who the hell am I to introduce people to this subject?

Let me lay it out as simply as I can. My son, after a long period of disturbed behaviour, and being evaluated by a child psychiatrist and other therapists, was finally diagnosed as Asperger's in 2006. Up to that point I had been vaguely aware of the term and its relation to the autism spectrum, without knowing very much about it. The pieces, however, very quickly fell into place. Olivier, as we'll be calling him, has always shown a level of intellectual development far ahead of his emotional maturity, a discrepancy which in itself seemed to be the root of frustration that led to aggressive and violent outbursts. He's socially awkward, not at all a bright outgoing child like his classmates. But that seemed like a reaction (his sister is very accomplished and slightly overbearing; I myself am socially distant, undemonstrative, cold in public) rather than a symptom.

Olivier has now been fully evaluated by the clinic who diagnosed him, and will be subject only to periodic evaluations for the time being. His school has two teachers who have training in dealing with autistics (though he's the only one diagnosed) and they're fully up to speed. We've been introduced to a psychiatric counsellor with experience of autism who'll be available when required, for any of us who needs it.

There's no cure for autism or Asperger's, and the more I read about the subject the less I'm convinced that a cure would even be desirable, in some if not all cases. Our job now is to help Olivier to grow up with his different way of looking at the world, making the most of it wherever possible and trimming it if need be to ease his own passage through life, and no-one else's.

I've become what you might call independently fascinated by the whole subject of autism. Most of what you find out is not actually of immediate personal use to me, my son or my family. But it's valuable in itself as knowledge, and as perspective. A painting like the Mona Lisa would only be part so effective if it dwelled on her face, and ignored the landscape in the distance.

The intention of this blog is to share things that I come across as I range freely across that landscape, perhaps making it easier for others who are looking for a way. But I won't be introducing anyone to the subject of autism so much as describing a few of the landmarks I've come across in my wandering.

For anyone who knows even less about Asperger's, there's a comprehensive if technical introduction here from Yale University. The British Autism Society lays out the whole subject of autism quite neatly at its site. The Wikipedia article is quite thorough, and as far as I can tell reliable.

The rest of this blog, I should imagine, will be my introductory post, serving to explain the subject to readers, as I explain it to myself. Perhaps more than any other blog, I'm open to having my notions taken apart by anyone who knows more and approaches the task in a civilised way. I hope along the way to have interesting material for all levels, but I hope more than anything else to do no harm by the exercise.